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Guideline for Approval of PWN Involvement in Research Projects
This Guideline outlines the process for the PWN Board of Directors to assess the viability of requests for research studies to be conducted with PWN members. The Executive Director, in consultation with staff, will pre-screen requests, eliminating those that appear inappropriate. The ED will then forward screened requests to the Board for discussion and possible approval.
Background Questions
- What is the name of the study?
- What is the time frame for the study?
- What other sites, groups or organizations have been approached for this research?
- What are the credentials of the research team?
Focus on Positive Women
- What does the research expect to accomplish and how will this directly benefit HIV positive women?
- How are women represented as a % in the study?
- How does the study represent the diversity of women living with HIV/AIDS?
Confidentially, Support and Communications
- Explain the project’s commitment to confidentiality.
- Please explain the recruitment process.
- What are the expectations of PWN’s staff involvement in the project?
- Please attach copies of your research tools (interview guide, focus group guide, surveys, etc.)
- Has the study been accepted by an ethics review committee?
- If there are personal questions being asked of PWN members, is there a justified and rational reason for these questions to be asked and what is the rationale?
- What participation and time commitment is expected of the women who take part in the study?
- Please describe the plan in place for counseling/debriefing for participants once the interviews, focus groups, surveys, etc. have been completed.
- Please describe the plan for communicating the results of the study to the participants.
Compensation
- What is the honoraria amount offered to the participants?
- What is the amount of the child care subsidy offered to the participants?
- What travel expenses will be provided (bus tickets, parking, mileage, etc.).
- Is there an administrative fee or honoraria available for PWN?
- Any other additional, relevant information about this study?
Thank you.