PWN at 20: The Power of Partnerships

In this, our twentieth year, we’re featuring a monthly blog series, PWN at 20 that looks at PWN’s unique place in Canada. Last month we looked at HIV in Aboriginal Communities.

There is power in partnerships. Our organization was a partnership from the start: HIV+ women and uninfected allies working together. We’ve benefitted greatly from the various viewpoints that partnerships offer. Learning from people, organizations and even landscapes has helped us improve services and resources for HIV+ women.

Partnerships connect people. Here’s a few of our wonderful partner projects over the years.

Oak Tree Clinic

Oak Tree Clinic, which is the province’s HIV care centre focussed on women and children, launched at BC Women’s Hospital in 1994. The idea behind a women-specific health centre was to include a place for women’s HIV care and a place where children were welcome and able to access treatment too. The planning committee was made up of doctors, social workers, and members of Positive Women’s Network, including the Executive Director, Marcie Summers.

The vision back in the 90’s continues in service delivery today, with comprehensive care for women that is provided by a multidisciplinary team of doctors, nurses, a pharmacist, dietician and social worker. Kids can come along to the play space, and if they’re infected themselves, they get care as well.

We also partner with Oak Tree in providing outreach, an important bridge for lots of women. Getting to medical appointments can be difficult, whether it’s because of travelling a long distance or because HIV itself has many challenges to body and spirit. Oak Tree’s Outreach Workers connect with women 1-1 and take them to their appointments to ease these challenges. One of the Outreach workers is part of the PWN staff team, an idea that was launched early on in the life of the Clinic. Having an Oak Tree staff person as a part of the PWN team means that information about services, programs and resources travels both ways between Oak Tree and PWN. Better awareness of options provides better support.

Physician Education Project

HIV is different for women than it is for men, a truth that still plays out today, but this was even more evident back in the 90’s when PWN started. The Physician Education Project took place at Grand Rounds sessions in hospitals. Doctors could provide the influence to get into the hospitals, and the team of doctor and positive woman would teach about medical and psychosocial realities of HIV+ women’s lives. This national demonstration project was offered around the Lower Mainland in 1995-1996 and presented at the XII International Conference on AIDS in Vancouver in 1996.

But our membership isn’t limited to the Lower Mainland. We approached several smaller communities in BC about the idea of taking physician education one step further. We didn’t want to just jump in with our experiences. We wanted to know what was happening for positive women locally in their communities, and how we could work together to improve things. The Healthcare Provider’s Education Project was a partnership of Positive Women’s Network, AIDS Prince George (now reshaped and renamed Positive Living North), ANKORS and AIDS Vancouver Island. We worked in each community to discover the issues. We expanded the project to include health care and social service providers beyond primary care or HIV doctors, because we were hearing that HIV phobia and stigma were also problematic outside the medical examining room. We trained local educators so they could make connections in the community that would benefit services and support beyond the end of the project.

Listen UP! Peers get WISE

Listen Up! was a multi-year project of peer driven research and peer-driven education. Positive women interviewed others about the risks that they felt had made them vulnerable to HIV and what resources might have helped them avoid it. Using the information gathered from the peer-research, PWN partnered with communities across BC to talk about the determinants of health and HIV risk for women. Small towns like Chetwynd, Williams Lake and Prince George and communities on Vancouver Island played host to the education team to present data and directions communities could take to support women.

A great project unfolded with YouthCO, Canada’s first youth-driven and youth-run HIV organization. We started together because young women were increasingly at HIV risk and underserved, which led to the Bases Covered awareness project. That evolved into two phases of Women’s Initiatives for Support and Education (WISE.  Peer-to-peer support and education resulted in resource development for young women infected and those who were at risk.

Transition Houses

Violence affects women with HIV significantly. Abusive partners can blame a woman for bringing HIV into the relationship, use it as a means to ensure she will stay in the relationship (“No one will love you now that you have HIV”). They can also control when she can or can’t access health care and support. Enter our partnership with the BC Society of Transition Houses. Many PWN members use transition houses to get out of abusive relationships, but fear they’ll not be welcome can hold them back. We’ve been delivering HIV education to staff at transition houses for years now. HIV transmission information, confidentiality and disclosure, universal precautions and advocacy issues all figure in the sessions.

We value our ongoing partnership with AIDS Vancouver for the Grocery program, and connect regularly with other member groups of the Pacific AIDS Network on committees and short term projects. We’re currently in partnership with Literacy Lives, a project sponsored by Simon Fraser University to increase health literacy of those living with HIV. And we’ve had a fantastic six months working with Tamara Landry, a PhD candidate from Universities Without Walls. Tamara has been interviewing members and community folks in documenting our 20th anniversary.

We believe that partnerships can create awesome possibilities. We’re grateful to the many we’ve worked with over the years, and definitely look forward to more. 

 - Janet 

This was posted on Friday, August 5th, 2011 at 6:00 am and is filed under Body Health, Daily Moments, Education & Resources, HIV Prevention, HIV stigma, HIV Transmission, Networking, News, PWN at 20, Research, sexual health, Support, Violence . Feel free to respond, or trackback. Read our comments policy.

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